That has to be one of the hardest things on the planet, to have to pick out a headstone for your child. No one should ever, ever have to pick out a headstone for his or her child. To know that his beautiful name would have to be engraved into a headstone was beyond my grasp, utterly devastating. #ButterflyChild http://www.butterflychildamothersjourney.com     #EBawareness #ebaware #stopEB #EpidermolysisBullosa